I'll see the specialist who was first author on the article on CNS vasculitis that I linked to last week. (Here it is again - you can see what she looks like.) She should be able to either rule out that possibility, or else order the right tests and make the right diagnosis. I think I'll be in good hands with her.
I feel very scared about my overall situation. While I've seen real improvement over the past week, I'm still very, very far from normal. Seeing a specialist somehow makes everything seem more concrete and threatening, even though I'm very grateful to be seeing a real expert.
I've had loads of test results come back negative, which is great. I know I don't have several different cancers; lupus or Sjogren's; any of the STIs that can affect the central nervous system; and a bunch of other stuff.
As far as I can see, the remaining possibilities are a fairly short list:
- CNS vasculitis (rare)
- MS (my symptoms and MRI don't quite fit, but I'm terrified of it)
- Transverse myelitis
- Some weird post-infection reaction (possibly to the surface infection in my nose that I had when this all began?)
Low vitamin D can contribute to the risk of various cancers, MS (eek), other autoimmune diseases, and most obviously weak bones. So here's my health PSA for the day: everyone should take a supplement - and get some sunshine!
Update 2/11/09, 11 p.m.: I'm now in the hotel, and since I'm superstitious in certain ways, here are the good portents of today:
1. I got a $67 a night rate downtown with free breakfast and parking at the Comfort Inn, which turned out to be located right next to Cleveland State. The hotel is not a pit. The neighborhood is has the character of an urban college campus, so I feel right at home.
2. The hotel room turned out to be a two-room suite.
3. The hotel wireless actually works.
4. On the trip up, we drove through tornado watches and severe thunderstorm warnings (up to 70 mph wind plus hail) and yet we barely even encountered any rain along the way.
5. My kids went to bed happily with their babysitter (a friend of mine who's spending the night).
Pretty auspicious, I think. :-)